Yay for Getting to Know You! Make sure to check out Keely's blog for other Getting to Know You posts.
1. Would you rather bungee jump or skydive?
I would absolutely never ever in my entire life do either one of those things. I am horribly afraid of heights and it is out of the question.
2. When using a public restroom do you squat over the seat or sit.
I sit on it. And if everyone would sit on it the seat wouldn't be so gross because it's you squatters that are the ones always peeing on the seat!
3. Favorite flower?
Well I'm not real big into flowers but for some reason I have always thought the black rose was pretty cool. I mean I wouldn't use them around my house for decoration or anything but I like them.
4. Pedicure or manicure?
Pedicure. I have a horrible addiction to biting my nail so a manicure would really be a waste of my money.
5. How many siblings do you have?
One sister.
6. Do you pee in the shower?
In the mornings when I am running late and I don't have time to use the toilet. Yep, my mom's gonna kill me when she reads this.
7. Bikini, tankini, or one piece.
Tankini. Especially now that I have my baby flab.
8. Where do you hate to shop but go there anyway?
Walmart. It's too crowded. There are too many stupid people there. I hate it!
Sunday, February 28, 2010
Tuesday, February 23, 2010
This is How I Feel
I normally stay away from sharing how I feel about things on my blog whether it be personal, political, or religious. I like to keep the atmosphere here light since this blog is about Belli and her personality is nothing but light and fun. But I have been feeling a little angry and kind of resentful lately about some things and my readers have always been so supportive so I thought I would use this venue to vent. In the grand scheme of things these issues that I am about to talk about aren't really that heavy but they have been weighing heavy on me lately.
I have been very stressed lately about Belli's eating, or lack there of, and her constipation issues. I spend the majority of my time with Belli either trying to get her to eat, trying to get her to poop, or cleaning up her throw up when she gags herself because she doesn't want to eat. I'm not exaggerating when I say that this really is what I do the majority of the day. It is so frustrating because when she won't eat or poop sometimes once I am done trying I end up not enjoying whatever else I am doing with Belli because I'm mad that she won't eat or poop.
We went to her GI yesterday and she is finally back on the growth chart which is good but the doctor upped her dose of Miralax and referred Belli to an OT for feeding therapy. I am hopeful that this will help her eating but I am also realistic. They use a lot of trickery to get the child to eat but quiet honestly Belli is smarter than that. I just don't know that it will work. We will see. The upped dose of Miralax doesn't seem to be working either. She has had two teaspoons the past two days and still hasn't pooped. I just don't get it.
Another thing that has really been bothering me is what Belli's neuro told us last week about how her head might be tilted because of the bones fusing that way and not because of strength. I just don't understand how it went unnoticed for the five and a half months that she was in the halo. As a surgeon how do you NOT see that. This poor baby already has enough problems but now her head is tilted a little and the only way to fix it would be to break her neck and refuse it. There is still a possibility that it is a muscle problem but I don't feel that it is. Her PT doesn't think so either. I'm sorry to sound like I am whining but it's just not fair.
I think what both of these issues really boils down to is that I feel like Belli already has enough issues to deal with that have been caused by the Larsen's so why did God feel the need to add these little extras? I mean we already have enough to worry about with her walking and her spinal problems and then her future dealing with these problems. Why do we have to deal with not eating and not pooping too? Why did God have to let her bones fuse crooked. I mean that was something that could have been so easily prevented.
I know that God is not really to blame and that this has all happened for reasons that I may never know. But I will just be real honest with you about this. I'm pissed. I can deal with all the other problems just fine because they go along with the Larsen's Syndrome and I accepted those problems and moved on a long long time ago. But the little added "bonuses"? Nope. I haven't accepted those and moved on. Especially the problem with her spine. Not when it could have been avoided. Not when it SHOULD have been avoided.
But then I just try to remember how easy we really have it. There are so many more problems that other children are facing that we are not. So, I will just count my blessings and try to get over it and move on.
I have been very stressed lately about Belli's eating, or lack there of, and her constipation issues. I spend the majority of my time with Belli either trying to get her to eat, trying to get her to poop, or cleaning up her throw up when she gags herself because she doesn't want to eat. I'm not exaggerating when I say that this really is what I do the majority of the day. It is so frustrating because when she won't eat or poop sometimes once I am done trying I end up not enjoying whatever else I am doing with Belli because I'm mad that she won't eat or poop.
We went to her GI yesterday and she is finally back on the growth chart which is good but the doctor upped her dose of Miralax and referred Belli to an OT for feeding therapy. I am hopeful that this will help her eating but I am also realistic. They use a lot of trickery to get the child to eat but quiet honestly Belli is smarter than that. I just don't know that it will work. We will see. The upped dose of Miralax doesn't seem to be working either. She has had two teaspoons the past two days and still hasn't pooped. I just don't get it.
Another thing that has really been bothering me is what Belli's neuro told us last week about how her head might be tilted because of the bones fusing that way and not because of strength. I just don't understand how it went unnoticed for the five and a half months that she was in the halo. As a surgeon how do you NOT see that. This poor baby already has enough problems but now her head is tilted a little and the only way to fix it would be to break her neck and refuse it. There is still a possibility that it is a muscle problem but I don't feel that it is. Her PT doesn't think so either. I'm sorry to sound like I am whining but it's just not fair.
I think what both of these issues really boils down to is that I feel like Belli already has enough issues to deal with that have been caused by the Larsen's so why did God feel the need to add these little extras? I mean we already have enough to worry about with her walking and her spinal problems and then her future dealing with these problems. Why do we have to deal with not eating and not pooping too? Why did God have to let her bones fuse crooked. I mean that was something that could have been so easily prevented.
I know that God is not really to blame and that this has all happened for reasons that I may never know. But I will just be real honest with you about this. I'm pissed. I can deal with all the other problems just fine because they go along with the Larsen's Syndrome and I accepted those problems and moved on a long long time ago. But the little added "bonuses"? Nope. I haven't accepted those and moved on. Especially the problem with her spine. Not when it could have been avoided. Not when it SHOULD have been avoided.
But then I just try to remember how easy we really have it. There are so many more problems that other children are facing that we are not. So, I will just count my blessings and try to get over it and move on.
Sunday, February 21, 2010
Getting to Know You
Yay! I am finally able to do Keely's Getting to Know You this week. I have been so busy the past two weeks I haven't been able to do it. Here goes!
1. How often do you wash/change your sheets?
I plead the fifth. Seriously.
2. When is your birthday?
June 23
3. Have you ever met a bloggy friend in real life.
No. Well I have a bloggy friend that was a friend before I start blogging. Does that count?
4. Brad Pitt or George Clooney?
Oh gosh. That one's really tough. They are both so hot! I think I would pick George Clooney though.
5. If you could change one thing about your body what would it be?
How my stretched skin from being pregnant flops over my c-section scar.
6. How often do you wash your hair?
Every morning.
7. Do you have pets?
One dog. She'll be 14 in April. And I bet she is smellier than Keely's dog.
8. How many social networks do you belong to? If you had to, which one would you give up?
Facebook, Twitter, Blogger, Myspace. I would get rid of Myspace because I haven't actually signed in to it in forever.
1. How often do you wash/change your sheets?
I plead the fifth. Seriously.
2. When is your birthday?
June 23
3. Have you ever met a bloggy friend in real life.
No. Well I have a bloggy friend that was a friend before I start blogging. Does that count?
4. Brad Pitt or George Clooney?
Oh gosh. That one's really tough. They are both so hot! I think I would pick George Clooney though.
5. If you could change one thing about your body what would it be?
How my stretched skin from being pregnant flops over my c-section scar.
6. How often do you wash your hair?
Every morning.
7. Do you have pets?
One dog. She'll be 14 in April. And I bet she is smellier than Keely's dog.
8. How many social networks do you belong to? If you had to, which one would you give up?
Facebook, Twitter, Blogger, Myspace. I would get rid of Myspace because I haven't actually signed in to it in forever.
Friday, February 19, 2010
Five Question Friday
I am finally getting around to Five Question Friday (at 8:30 at night)! Thanks to Mama M for hosting. Here are Belli's answers to this weeks questions:
1. Have you ever hit an animal with your vehicle?
I may have squashed a few bugs here and there in my Cozy Coupe.
2. When you see a string on your clothes do you pull it off or cut it off?
Neither. I just yell "Mommy, get it off mommy get it oooooofffff!" Then my mommy gives me the look and I say, "Please!"
3. Did you have your own room or share a room when you were young?
The times we have lived at Mimi and Granddad's house I have my own room as long as my aunt isn't home. When she's home my mommy sleeps in the room with me. When we lived at daddy's and when I go over there for weekends I have my own room too.
4. Would you rather wear the same thing for the rest of your life or eat the same thing for the rest of your life?
I would rather eat nothing for the rest of my life.
5. What was your favorite TV show as a child.
So far it's Sesame Street and Little Einsteins.
Ok, that's it until next week!
1. Have you ever hit an animal with your vehicle?
I may have squashed a few bugs here and there in my Cozy Coupe.
2. When you see a string on your clothes do you pull it off or cut it off?
Neither. I just yell "Mommy, get it off mommy get it oooooofffff!" Then my mommy gives me the look and I say, "Please!"
3. Did you have your own room or share a room when you were young?
The times we have lived at Mimi and Granddad's house I have my own room as long as my aunt isn't home. When she's home my mommy sleeps in the room with me. When we lived at daddy's and when I go over there for weekends I have my own room too.
4. Would you rather wear the same thing for the rest of your life or eat the same thing for the rest of your life?
I would rather eat nothing for the rest of my life.
5. What was your favorite TV show as a child.
So far it's Sesame Street and Little Einsteins.
Ok, that's it until next week!
Wednesday, February 17, 2010
Wordless Wednesday
Instead of my usual Belli picture I am going to vary from the norm and post this picture of a painting I did last night at Sips N' Strokes. I don't know if you have this in your area, or something like it, but it's a really awesome place. They have a different painting every night and a teacher tell you step by step how to paint it. If you click on the link and look at the 16th that is what the painting was supposed to look like. And this is how mine turned out. It actually looks a lot better in person. Or at least that's what I am telling my self. I couldn't get the shiny spot on the bottom off and when I tried to take it without the flash is was just way to dark. Anywho. Here ya go...
Tuesday, February 16, 2010
Neuro Appointment Today
*Update*
Well, as always Belli is full of surprises and you just never know what you are going to get at her neuro appointments. The good news is that the bad alignment in her neck that was fused still looks good. That part is still lined up and her spinal cord is still safe.
The bad news is that her head has a slight tilt to it that may not be fixable with therapy. I noticed that her head tilted a little to the right but just assumed that it was an issue with strength in her neck. She's always had a collar and has never had a chance to use those neck muscles so it seemed plausible and at this point still is.
However, the most likely cause is that while she was in the halo one side was cranked a little tighter than the other and her head was in the halo like that. You just couldn't tell by looking at her. If so that means that her bones fused that way and therapy won't help.
We will go back in a month for a CT scan so her doctor can get a better look at the bones and we will know more then. If he sees that the bones have fused that way then we will discuss the options. I don't know what the options are but her doctor did say that he doesn't know that whatever he would have to do to fix it would be worth it after all that has been accomplished. Right now it isn't that noticeable so the best option may be just to leave it alone.
But in the mean time I will just pray that it is simply a strength issue and not a bone issue. But knowing Isabelle...it's probably the latter.
*Original Post*
I meant to post this last night since I pretty much covet all of your prayers but I forgot until just now.
Belli has an appointment today with her neuro. It's just a regular check up so no emergency or anything but these appointment always make me nervous. They just want to check and make sure everything is still lined up and looking good.
So please pray for a good report! I will post what the neuro says later today!
Well, as always Belli is full of surprises and you just never know what you are going to get at her neuro appointments. The good news is that the bad alignment in her neck that was fused still looks good. That part is still lined up and her spinal cord is still safe.
The bad news is that her head has a slight tilt to it that may not be fixable with therapy. I noticed that her head tilted a little to the right but just assumed that it was an issue with strength in her neck. She's always had a collar and has never had a chance to use those neck muscles so it seemed plausible and at this point still is.
However, the most likely cause is that while she was in the halo one side was cranked a little tighter than the other and her head was in the halo like that. You just couldn't tell by looking at her. If so that means that her bones fused that way and therapy won't help.
We will go back in a month for a CT scan so her doctor can get a better look at the bones and we will know more then. If he sees that the bones have fused that way then we will discuss the options. I don't know what the options are but her doctor did say that he doesn't know that whatever he would have to do to fix it would be worth it after all that has been accomplished. Right now it isn't that noticeable so the best option may be just to leave it alone.
But in the mean time I will just pray that it is simply a strength issue and not a bone issue. But knowing Isabelle...it's probably the latter.
*Original Post*
I meant to post this last night since I pretty much covet all of your prayers but I forgot until just now.
Belli has an appointment today with her neuro. It's just a regular check up so no emergency or anything but these appointment always make me nervous. They just want to check and make sure everything is still lined up and looking good.
So please pray for a good report! I will post what the neuro says later today!
Wednesday, February 10, 2010
Black and White Wednesday-Toothless Flashback
**Please visit my giveaway benefiting The Bell Center! All you need is one dollar and you can win some great stuff!**
Join in the Black and White Wednesday fun at The Long Road to China.
Join in the Black and White Wednesday fun at The Long Road to China.
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