So for those of you who didn't know we had an appointment with Isabelle's neurosurgeon today because there were some concerns that she was moving her neck more than should be able to. Most people with the type of fusion that Isabelle has will have absolutely zero motion in their neck. Isabelle however has been looking down and even side to side some. The motion is very limited but it was enough to warrant a check up. We went in and they took some x-rays and from what the doctor saw everything is still in line just like it is supposed to be.
This, of course, begs the question "Then how is she moving her neck?"
It's a good question. However, it is a question that we do not know the answer to. One explanation is that because she has one vertebrae in her c-spine that is not fused that one vertebrae is allowing her that motion. It could be that because she has Larsen's and her joints are so loose anyway that she has more motion than a typical person would. It could be a mixture of both of those things or it could be just one of those things you chalk up to God's work. We may never know but we will take it!